{"id":10354,"date":"2026-05-15T18:10:11","date_gmt":"2026-05-15T21:10:11","guid":{"rendered":"https:\/\/portal.pi.gov.br\/sesapi\/?p=10354"},"modified":"2026-05-15T18:10:12","modified_gmt":"2026-05-15T21:10:12","slug":"hilp-compartilha-experiencia-pioneira-no-cuidado-a-pacientes-com-ame-em-evento-academico","status":"publish","type":"post","link":"https:\/\/portal.pi.gov.br\/sesapi\/2026\/05\/15\/hilp-compartilha-experiencia-pioneira-no-cuidado-a-pacientes-com-ame-em-evento-academico\/","title":{"rendered":"HILP compartilha experi\u00eancia pioneira no cuidado a pacientes com AME em evento acad\u00eamico"},"content":{"rendered":"\n

Por: Cl\u00e1udia Bezerra \/ Ascom HILP<\/p>\n\n\n\n

<\/p>\n\n\n\n

O Hospital Infantil Luc\u00eddio Portella (HILP) participou, nesta sexta-feira (15), de uma mesa-redonda promovida durante evento acad\u00eamico do curso de Farm\u00e1cia do Centro Universit\u00e1rio Santo Agostinho (UNIFSA), em Teresina. O debate teve como tema \u201cA multidisciplinaridade no cuidado de pacientes com Atrofia Muscular Espinhal: a atua\u00e7\u00e3o integrada de m\u00e9dicos, enfermeiros e farmac\u00eauticos\u201d.<\/p>\n\n\n\n

Representando o HILP, participaram da discuss\u00e3o a m\u00e9dica pediatra Lorena Mesquita, a farmac\u00eautica respons\u00e1vel pelo Programa AME no hospital, Ana Karina, a enfermeira da Unidade de Cuidados Especiais (UCE), Ge\u00f3rgia Menor, e a coordenadora da Farm\u00e1cia do HILP, Maria Vit\u00f3ria.<\/p>\n\n\n\n

Durante a apresenta\u00e7\u00e3o, a equipe compartilhou a experi\u00eancia do Hospital Infantil no acompanhamento e tratamento de crian\u00e7as diagnosticadas com Atrofia Muscular Espinhal (AME), destacando o trabalho integrado entre diferentes \u00e1reas da assist\u00eancia.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Atualmente, o Hospital Infantil Luc\u00eddio Portella acompanha 24 crian\u00e7as com AME, consolidando-se como refer\u00eancia no diagn\u00f3stico, tratamento e acompanhamento multiprofissional desses pacientes no Piau\u00ed.<\/p>\n\n\n\n

Segundo a m\u00e9dica Lorena Mesquita, a participa\u00e7\u00e3o no evento foi uma oportunidade de apresentar a experi\u00eancia exitosa desenvolvida pela unidade. \u201cO Hospital Infantil vem sendo refer\u00eancia em AME no Brasil. Houve grande interesse em conhecer como funciona nosso programa, desde o fluxo de atendimento at\u00e9 a experi\u00eancia constru\u00edda ao longo desses anos com assist\u00eancia multiprofissional \u00e0s crian\u00e7as e suas fam\u00edlias\u201d, destacou.<\/p>\n\n\n\n

O momento tamb\u00e9m permitiu troca de conhecimentos com estudantes e profissionais da \u00e1rea farmac\u00eautica, refor\u00e7ando a import\u00e2ncia da integra\u00e7\u00e3o entre ensino, pesquisa e assist\u00eancia em sa\u00fade.<\/p>\n\n\n\n

\u201cO Hospital Infantil Luc\u00eddio Portella \u00e9 refer\u00eancia no Brasil no atendimento de crian\u00e7as com doen\u00e7as raras e j\u00e1 se destaca nacionalmente pela atua\u00e7\u00e3o no tratamento da Atrofia Muscular Espinhal, incluindo terapias avan\u00e7adas e acompanhamento especializado\u201d, informa Lorena Mesquita.<\/p>\n","protected":false},"excerpt":{"rendered":"

Por: Cl\u00e1udia Bezerra \/ Ascom HILP O Hospital Infantil Luc\u00eddio Portella (HILP) participou, nesta sexta-feira (15), de uma mesa-redonda promovida durante evento acad\u00eamico do curso de Farm\u00e1cia do Centro Universit\u00e1rio […]<\/p>\n","protected":false},"author":1814,"featured_media":10356,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":[],"categories":[30],"tags":[73,142,43,36,85],"featured_image_urls":{"full":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1.jpg",1600,719,false],"thumbnail":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-150x150.jpg",150,150,true],"medium":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-300x135.jpg",300,135,true],"medium_large":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-768x345.jpg",768,345,true],"large":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-1024x460.jpg",887,398,true],"sgg-420":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-420x189.jpg",420,189,true],"sgg-540":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-540x243.jpg",540,243,true],"sgg-780":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-780x351.jpg",780,351,true],"1536x1536":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-1536x690.jpg",1536,690,true],"2048x2048":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1.jpg",1600,719,false],"homepage-slider":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-1270x500.jpg",1270,500,true],"homepage-slider-small":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-947x500.jpg",947,500,true],"page-top":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-947x426.jpg",947,426,true],"page-small":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-624x280.jpg",624,280,true],"loop-main":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-365x240.jpg",365,240,true],"thumb-gallery-widget":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-84x56.jpg",84,56,true]},"post_excerpt_stackable":"

Por: Cl\u00e1udia Bezerra \/ Ascom HILP O Hospital Infantil Luc\u00eddio Portella (HILP) participou, nesta sexta-feira (15), de uma mesa-redonda promovida durante evento acad\u00eamico do curso de Farm\u00e1cia do Centro Universit\u00e1rio Santo Agostinho (UNIFSA), em Teresina. O debate teve como tema \u201cA multidisciplinaridade no cuidado de pacientes com Atrofia Muscular Espinhal: a atua\u00e7\u00e3o integrada de m\u00e9dicos, enfermeiros e farmac\u00eauticos\u201d. Representando o HILP, participaram da discuss\u00e3o a m\u00e9dica pediatra Lorena Mesquita, a farmac\u00eautica respons\u00e1vel pelo Programa AME no hospital, Ana Karina, a enfermeira da Unidade de Cuidados Especiais (UCE), Ge\u00f3rgia Menor, e a coordenadora da Farm\u00e1cia do HILP, Maria Vit\u00f3ria. Durante a…<\/p>\n","category_list":"Not\u00edcias<\/a>","author_info":{"name":"elisangelapegado","url":"https:\/\/portal.pi.gov.br\/sesapi\/author\/elisangelapegado\/"},"comments_num":"0 coment\u00e1rio","featured_image_urls_v2":{"full":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1.jpg",1600,719,false],"thumbnail":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-150x150.jpg",150,150,true],"medium":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-300x135.jpg",300,135,true],"medium_large":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-768x345.jpg",768,345,true],"large":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-1024x460.jpg",887,398,true],"sgg-420":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-420x189.jpg",420,189,true],"sgg-540":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-540x243.jpg",540,243,true],"sgg-780":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-780x351.jpg",780,351,true],"1536x1536":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-1536x690.jpg",1536,690,true],"2048x2048":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1.jpg",1600,719,false],"homepage-slider":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-1270x500.jpg",1270,500,true],"homepage-slider-small":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-947x500.jpg",947,500,true],"page-top":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-947x426.jpg",947,426,true],"page-small":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-624x280.jpg",624,280,true],"loop-main":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-365x240.jpg",365,240,true],"thumb-gallery-widget":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1-84x56.jpg",84,56,true]},"post_excerpt_stackable_v2":"

Por: Cl\u00e1udia Bezerra \/ Ascom HILP O Hospital Infantil Luc\u00eddio Portella (HILP) participou, nesta sexta-feira (15), de uma mesa-redonda promovida durante evento acad\u00eamico do curso de Farm\u00e1cia do Centro Universit\u00e1rio Santo Agostinho (UNIFSA), em Teresina. O debate teve como tema \u201cA multidisciplinaridade no cuidado de pacientes com Atrofia Muscular Espinhal: a atua\u00e7\u00e3o integrada de m\u00e9dicos, enfermeiros e farmac\u00eauticos\u201d. Representando o HILP, participaram da discuss\u00e3o a m\u00e9dica pediatra Lorena Mesquita, a farmac\u00eautica respons\u00e1vel pelo Programa AME no hospital, Ana Karina, a enfermeira da Unidade de Cuidados Especiais (UCE), Ge\u00f3rgia Menor, e a coordenadora da Farm\u00e1cia do HILP, Maria Vit\u00f3ria. Durante a…<\/p>\n","category_list_v2":"Not\u00edcias<\/a>","author_info_v2":{"name":"elisangelapegado","url":"https:\/\/portal.pi.gov.br\/sesapi\/author\/elisangelapegado\/"},"comments_num_v2":"0 coment\u00e1rio","jetpack_featured_media_url":"https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2026\/05\/a446caa2-618a-4136-aeb3-1445b5349b97-1.jpg","_links":{"self":[{"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/posts\/10354"}],"collection":[{"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/users\/1814"}],"replies":[{"embeddable":true,"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/comments?post=10354"}],"version-history":[{"count":1,"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/posts\/10354\/revisions"}],"predecessor-version":[{"id":10357,"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/posts\/10354\/revisions\/10357"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/media\/10356"}],"wp:attachment":[{"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/media?parent=10354"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/categories?post=10354"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/tags?post=10354"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}