{"id":4062,"date":"2025-05-16T11:52:02","date_gmt":"2025-05-16T14:52:02","guid":{"rendered":"https:\/\/portal.pi.gov.br\/sesapi\/?p=4062"},"modified":"2025-05-16T11:52:03","modified_gmt":"2025-05-16T14:52:03","slug":"hilp-esta-entre-os-hospitais-do-brasil-aptos-a-realizar-a-infusao-de-zolgensma-pelo-sus","status":"publish","type":"post","link":"https:\/\/portal.pi.gov.br\/sesapi\/2025\/05\/16\/hilp-esta-entre-os-hospitais-do-brasil-aptos-a-realizar-a-infusao-de-zolgensma-pelo-sus\/","title":{"rendered":"HILP est\u00e1 entre os hospitais do Brasil aptos a realizar a infus\u00e3o de Zolgensma pelo SUS"},"content":{"rendered":"\n

O Minist\u00e9rio da Sa\u00fade anunciou as primeiras infus\u00f5es de Zolgensma no SUS, medicamento de alt\u00edssimo custo indicado para o tratamento de crian\u00e7as com Atrofia Muscular Espinhal (AME). No Piau\u00ed, o Hospital Infantil Luc\u00eddio Portella (HILP) est\u00e1 entre as unidades habilitadas a realizar a infus\u00e3o do medicamento na rede p\u00fablica.<\/p>\n\n\n\n

“\u00c9 muito importante para o Piau\u00ed ter um dos hospitais da Rede Estadual de Sa\u00fade apto \u00e0 aplica\u00e7\u00e3o do tratamento com Zolgensma, custeado pelo SUS. Trata-se de um dos medicamentos mais inovadores para a AME, o que possibilita mais qualidade de vida para as crian\u00e7as acometidas pela doen\u00e7a\u201d, destacou o secret\u00e1rio de Estado da Sa\u00fade, Antonio Luiz.<\/p>\n\n\n\n

O Zolgensma \u00e9 a primeira terapia g\u00eanica incorporada ao SUS. Considerado um dos medicamentos mais caros do mundo, possui custo m\u00e9dio de R$ 7 milh\u00f5es por dose (dose \u00fanica). Sua oferta na rede p\u00fablica foi viabilizada por meio de um Acordo de Compartilhamento de Risco firmado entre o Minist\u00e9rio da Sa\u00fade e a fabricante. O modelo, in\u00e9dito no pa\u00eds, condiciona o pagamento ao resultado da terapia no paciente e permitiu que o Brasil alcan\u00e7asse o menor pre\u00e7o de lista do mundo.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Desde 2023, o Hospital Infantil Luc\u00eddio Portella j\u00e1 realiza a aplica\u00e7\u00e3o da medica\u00e7\u00e3o em crian\u00e7as com AME, sendo pioneiro na administra\u00e7\u00e3o do Zolgensma no estado e proporcionando esperan\u00e7a a muitas fam\u00edlias. At\u00e9 o momento, cinco crian\u00e7as j\u00e1 receberam o medicamento na unidade de sa\u00fade.<\/p>\n\n\n\n

\u201cInfelizmente, a AME n\u00e3o tem cura, mas a utiliza\u00e7\u00e3o do Zolgensma \u00e9 fundamental para estabilizar a progress\u00e3o da doen\u00e7a\u201d, explica a diretora t\u00e9cnica do HILP e m\u00e9dica respons\u00e1vel pela aplica\u00e7\u00e3o do medicamento, Lorena Mesquita.<\/p>\n\n\n\n

De acordo com o Minist\u00e9rio da Sa\u00fade, para solicitar o tratamento, as fam\u00edlias devem procurar um servi\u00e7o especializado do SUS. O m\u00e9dico realizar\u00e1 a avalia\u00e7\u00e3o cl\u00ednica da crian\u00e7a e, caso os crit\u00e9rios de elegibilidade sejam atendidos, iniciar\u00e1 o processo de solicita\u00e7\u00e3o da terapia.<\/p>\n\n\n\n

\u201cA incorpora\u00e7\u00e3o definitiva do Zolgensma ao SUS e o protagonismo do Hospital Infantil Luc\u00eddio Portella representam um marco na sa\u00fade p\u00fablica brasileira, garantindo que crian\u00e7as com AME tenham uma chance real de vida e desenvolvimento\u201d, afirma o superintendente de M\u00e9dia e Alta Complexidade da Sesapi, Dirceu Camp\u00ealo.<\/p>\n","protected":false},"excerpt":{"rendered":"

O Minist\u00e9rio da Sa\u00fade anunciou as primeiras infus\u00f5es de Zolgensma no SUS, medicamento de alt\u00edssimo custo indicado para o tratamento de crian\u00e7as com Atrofia Muscular Espinhal (AME). No Piau\u00ed, o […]<\/p>\n","protected":false},"author":1813,"featured_media":4063,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":[],"categories":[30],"tags":[],"featured_image_urls":{"full":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27.jpeg",1158,852,false],"thumbnail":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-150x150.jpeg",150,150,true],"medium":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-300x221.jpeg",300,221,true],"medium_large":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-768x565.jpeg",768,565,true],"large":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-1024x753.jpeg",887,652,true],"sgg-420":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-420x309.jpeg",420,309,true],"sgg-540":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-540x397.jpeg",540,397,true],"sgg-780":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-780x574.jpeg",780,574,true],"1536x1536":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27.jpeg",1158,852,false],"2048x2048":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27.jpeg",1158,852,false],"homepage-slider":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-1158x500.jpeg",1158,500,true],"homepage-slider-small":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-947x500.jpeg",947,500,true],"page-top":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-947x697.jpeg",947,697,true],"page-small":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-624x459.jpeg",624,459,true],"loop-main":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-365x240.jpeg",365,240,true],"thumb-gallery-widget":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-84x56.jpeg",84,56,true]},"post_excerpt_stackable":"

O Minist\u00e9rio da Sa\u00fade anunciou as primeiras infus\u00f5es de Zolgensma no SUS, medicamento de alt\u00edssimo custo indicado para o tratamento de crian\u00e7as com Atrofia Muscular Espinhal (AME). No Piau\u00ed, o Hospital Infantil Luc\u00eddio Portella (HILP) est\u00e1 entre as unidades habilitadas a realizar a infus\u00e3o do medicamento na rede p\u00fablica. “\u00c9 muito importante para o Piau\u00ed ter um dos hospitais da Rede Estadual de Sa\u00fade apto \u00e0 aplica\u00e7\u00e3o do tratamento com Zolgensma, custeado pelo SUS. Trata-se de um dos medicamentos mais inovadores para a AME, o que possibilita mais qualidade de vida para as crian\u00e7as acometidas pela doen\u00e7a\u201d, destacou o secret\u00e1rio…<\/p>\n","category_list":"Not\u00edcias<\/a>","author_info":{"name":"brenocavalcante","url":"https:\/\/portal.pi.gov.br\/sesapi\/author\/brenocavalcante\/"},"comments_num":"0 coment\u00e1rio","featured_image_urls_v2":{"full":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27.jpeg",1158,852,false],"thumbnail":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-150x150.jpeg",150,150,true],"medium":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-300x221.jpeg",300,221,true],"medium_large":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-768x565.jpeg",768,565,true],"large":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-1024x753.jpeg",887,652,true],"sgg-420":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-420x309.jpeg",420,309,true],"sgg-540":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-540x397.jpeg",540,397,true],"sgg-780":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-780x574.jpeg",780,574,true],"1536x1536":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27.jpeg",1158,852,false],"2048x2048":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27.jpeg",1158,852,false],"homepage-slider":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-1158x500.jpeg",1158,500,true],"homepage-slider-small":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-947x500.jpeg",947,500,true],"page-top":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-947x697.jpeg",947,697,true],"page-small":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-624x459.jpeg",624,459,true],"loop-main":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-365x240.jpeg",365,240,true],"thumb-gallery-widget":["https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27-84x56.jpeg",84,56,true]},"post_excerpt_stackable_v2":"

O Minist\u00e9rio da Sa\u00fade anunciou as primeiras infus\u00f5es de Zolgensma no SUS, medicamento de alt\u00edssimo custo indicado para o tratamento de crian\u00e7as com Atrofia Muscular Espinhal (AME). No Piau\u00ed, o Hospital Infantil Luc\u00eddio Portella (HILP) est\u00e1 entre as unidades habilitadas a realizar a infus\u00e3o do medicamento na rede p\u00fablica. “\u00c9 muito importante para o Piau\u00ed ter um dos hospitais da Rede Estadual de Sa\u00fade apto \u00e0 aplica\u00e7\u00e3o do tratamento com Zolgensma, custeado pelo SUS. Trata-se de um dos medicamentos mais inovadores para a AME, o que possibilita mais qualidade de vida para as crian\u00e7as acometidas pela doen\u00e7a\u201d, destacou o secret\u00e1rio…<\/p>\n","category_list_v2":"Not\u00edcias<\/a>","author_info_v2":{"name":"brenocavalcante","url":"https:\/\/portal.pi.gov.br\/sesapi\/author\/brenocavalcante\/"},"comments_num_v2":"0 coment\u00e1rio","jetpack_featured_media_url":"https:\/\/portal.pi.gov.br\/sesapi\/wp-content\/uploads\/sites\/101\/2025\/05\/WhatsApp-Image-2025-05-16-at-11.50.27.jpeg","_links":{"self":[{"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/posts\/4062"}],"collection":[{"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/users\/1813"}],"replies":[{"embeddable":true,"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/comments?post=4062"}],"version-history":[{"count":1,"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/posts\/4062\/revisions"}],"predecessor-version":[{"id":4064,"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/posts\/4062\/revisions\/4064"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/media\/4063"}],"wp:attachment":[{"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/media?parent=4062"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/categories?post=4062"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/portal.pi.gov.br\/sesapi\/wp-json\/wp\/v2\/tags?post=4062"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}